Random

I’ve been weirdly tired again this week – a lot more so than normally. I can barely stay up for 8-10 hours before feeling like I absolutely need to get some more sleep :( When I do sleep, I haven’t really woken up feeling rested and refreshed. (Not that I ever do, really, these days, but at least I feel less tired when I wake than I did when I went to sleep.) Incidentally, Crohn’s symptoms have been a little worse this week too. Just had a big battery of blood test 3-4 weeks ago, and hemoglobin was okay… not great, but okay, unless there’s been drastic change in it, that shouldn’t be it.

Been getting back to fanlistings a little bit.Managed to integrate Enthusiast and WordPress so I can show collective pages (Joined, Owned) through WordPress :D http://magical.crystalfires.net/

Apparently there’s no Jeri Ryan fanlisting anymore… though I could swear I came across it a few weeks ago, still owned by the person whom I adopted it out to. But it isn’t listed at TFL anymore. Been trying to track down the URL, but it’s not in my e-mails and google only seems to come up with the URL it had while I owned it *sigh*

Insomnia/Health Update

Looks life the insomnia might finally be relenting – out of last 16 days, I’ve been able to sleep on 14 :D And most of the time on nights too like normal people :) I still wake up too easily in the middle but I’ve been able to get back to sleep again when I do wake up. Weirdly enough, it  started relenting almost immediately after I made my last health update post here and mentioned the insomnia in it. Maybe it helped to say it out loud? Although I’ve been telling about it to a few family and friends in RL since the start so don’t know why telling about it on internet would help… but yeah, I’m cautionally optimistic about this :) Maybe this problem won’t need seeing a doctor after all :D

Health Update

Thought I’d do a health update – I don’t think I’ve done one since I got home from the hospital in February. Better get this down now, when still I remember everything what’s been going on since February…

Continue reading

Newest Hospital News

I’m still in the hospital, and don’t know when I’ll be released.

I can now confirm, that the big thing was/is my liver accompanied by a few other smaller things. Seems I’ve started recovering now though because my liver vitals improved a lot over the weekend.

There are still some liver related tests and biopsy results pending, and I guess they want to wait for those because the usual things that they look for first came up all clear, and now checking for other possible causes. So there’s no diagnosis yet.

So, heading to right direction at the moment but not out of the woods yet.

In The Hospital

All sites are on hiatus until further notice.

I’m in the hospital, been here since yesterday morning – first at the ER then ward. Don’t know when I can go back home, they need to find out what caused the acute bad diarrhea that induced dehydration (so bad I was falling down due to dizzyness) – antibiotic  or acute worsening of Crohn’s Disease.

Continue reading

Back From The 4th Colonoscopy

Got home a couple of hours ago.

The colonoscopy procedure itself went fine, a few bad spots on the way in but I got pain medication when I needed it so nothing too terrible. The doctor who performed the colonoscopy (proctologist?) says visually everything’s looking good and indeed I could see it myself too – just like last time I could see the red parts as well. She naturally took biopsies so I’ll hear the final results two weeks from now and what’s the next step.

Doing the cleansing in two parts isn’t working for me, however – the next time I’m sticking to the “cleansing in one evening/day” schedule I used three times before. In one way, this two part one was much easier – it wasn’t as violent as the “all in one day” schedule, allowing me to rest a lot between during during cleansing – which I can’t do at all with the “all in one day” schedule until the cleansing is over because once it starts, I can’t get out of bathroom. With this two part schedule, that wasn’t really a problem – it was a lot slower. BUT. A big BUT.

Continue reading

4th Colonoscopy

Tomorrow’s my 4th colonoscopy. Yay. CRP and CALPRO still elevated, although CALPRO has come down about half from the previous. Still high though. Meds not as effective as hoped. So the docs what to see what my bowels is looking like now, is there inflammation left and how bad. I altready thought I might escape without a colonoscopy this time, the doc took a long enough time to suggest it that I hoped it, but no such luck :(

This time they have me do the bloody awful, horrible emptying in parts: part 1 today and then tomorrow part 2 early tomorrow morning. All three times before I’ve done it in one, which took 8-9 hours all in all and was hell. Much worse than the procedure itself. But maybe this “do it in two parts” is easier? Common sense says it should be… fingers crossed…