Crystal Fires
https://www.crystalfires.net


Tuesday, July 17, 2018
blessed silence listless, disappointed

It’s been a miserable summer since May. It’s been hot nearly all the time – both “hot-for-me” and legitimately hot, and it just seems to be getting worse and worse. Yesterday was 32 (Celcius), today it’s promised to be 33 with no cloud. I just barely made it through yesterday, today stretches long and torturous in front of me. It’ll feel like dying.

I can’t even think of tomorrow yet.

It’s promised to stay well above 25 for the next 10 days, but hopefully that gets adjusted downwards to something more normal as the days go by.

My migraine is bad and getting worse, and also I’m feeling just bad overall due the bright sun and the constant heat. I’ve reached the limit of my ability to stand the heat for this year, and now it’s taking all I have to just exist. I don’t know that I’m able to work much on my sites or anything online until the heat is over. So this is your Hiatus warning. It things go well, I’ll be back to normal later this month but it may just as well be end of August or early September before I have energy for anything beyond surviving. Totally depends on the weather now.

I’m writing this at 5.30AM and it feels weird. I’m not a morning person (at all!) but these days mornings are the only time of day I can breathe and feel normal for a couple of hours. That’s when I have to do all the household work and grocery shopping and such right now.

Hey Finnish Summer, I’m ready for you to go back to normal! Cold and gray, rain and all!

 



Saturday, May 26, 2018

I had a really really good day on Wednesday; my migraine was actually totally gone – not even a hint of it anywhere to be found!  😯 😀 No vague pressure in my head, or quick scalpel slash of pain if I happened to move just the wrong way… nothing. I can’t even remember the last time a had a day like that; must be three or four years ago. But I had a bad migraine attack on Thursday and a little less severe yesterday, that didn’t go all the way away and now it’s all nasty feeling all the time again 🙁

And also, it’s that time of year again… I complain about the stupid hot weather. The third week of steady heat is starting, and it’s not even summer yet! I think the migraine is so damn bad again partly due to the heat. I’ve reached my tolerance limit of heat and bright sun, now it’ll be just enduring and suffering until it goes away and the current weather prediction says that be on June 4th *fingers crossed* it’ll be earlier but at least not any later!

Seems to me the last few years that May, which is (supposed to be) still spring here, is actually all out summer these days. The heat personally bothers me and I could do with out it entirely, but it feels like the summer is starting earlier these days, and the actual summer is a little colder.

Cool weather, please to be making an appearance soon!

 



Monday, May 7, 2018

It’s been about a year since I last did a health update, and the last time I did, I had started vocational rehabilitation. It was both really good, and really bad and I went into some detail about that in that post I linked. The rehabilitation ended in mid-October, with only one one-on-one interview (as opposed to group session) and two group half-day sessions spread over February and March this year. These were optional, while all the before was mandatory.

 

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Tuesday, May 16, 2017

On the April 3rd I started a vocational rehabilitation course 🙂

I’d been planning this for like the last four years or more but always either had to push it back because of new illness or old symptoms getting a lot worse before I even sent in my application or once, had to cancel my application it because my Crohn’s Disease suddenly got really bad and there were procedures planned which would’ve required sick leave for about 1/3 of the first month. Which would’ve made the thing a waste and useless :/ It took this long for me to stabilize and be so so that things feel like this is the new normal and that I can maybe do other stuff than just be at home and try to make it through the day okay. Then it took like about a year the unemployment agency & doctors etc. on board with the idea and go through the steps from there. So yay! I’m finally at this step! 😀

The course consists of periods of days/weeks at the rehabilition center’s premises and of work training (weeks/months). The first stage lasted for four weeks, and I’m currently at the second stage – the first working training.
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Friday, October 21, 2016

Everything went smooth and easy, and I got back home about three hours ago. I’m sore but much less than I thought I’d be… though the pain killers they gave me might still be working at a base level so we’ll see what’s tomorrow like. I’m hugely tired but it’s a good tired  :cheer:



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